Saturday, August 23, 2008

Tough situation

Hi Everyone,

A bit ago I emailed about a Haitian infant now in the US named Pierre.  His situation is complex.  In short, he came for cleft lip/palate repair.  But in due course he has now been found to have multiple endocrine problems including
  • "diabetes insipidus"--basically he cannot regulate his sodium level on his own.  So he produces VERY dilute urine which leads to very high levels of sodium in his blood.  Untreated this is fatal.  He is on medications now.
  • hypogonadism--he doesn't produce testosterone.  So he'll eventually need testosterone replacement.
  • secondary adrenal insufficiency--he doesn't appear to be producing cortisol.  This requires medication.
He probably is probably not producing growth hormone which, if untreated, will lead to brain damage among other things.

He has not had surgery yet, and it appears it will not be done right now.  The big question is this:  if he goes back to Haiti will he live?  Given the situation the outlook would be grim to grave, at best.  He would need medications and regular lab testing (to adjust the medications), as well as a physician who could manage his conditions.
I understand that his mother is a single mom living with an aunt/uncle, and that she may not have a job. 

Another option would be to look for an adoptive family in the US.  This boy will require a family with health insurance that would agree to cover all costs (including surgeries, I should think).   The mom may be willing to consider an adoption.

A longer-shot (I've not heard of this happening) would be to have the mom come up here to become a citizen.  This approach probably isn't even close to realistic.


If you have suggestions please let me know.  Please pray about this.  Pray for wisdom and opportunity.  Pray that God's Will would be evident.  Quite seriously, I mean this.  This is a very difficult dilemma.

You can also direct further questions to Vanessa Carpenter (Angel Missions Haiti):
angelmissions@hotmail.com

Ben

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